The co-design of an online support programme with and for informal carers of people with heart failure: A methodological paper
- Författare
- Hanna Allemann, Frida Andréasson, Elizabeth Hanson, , Lennart Magnusson, Tiny Jaarsma, Ingela Thylén, Anna Strömberg
- Titel
- The co-design of an online support programme with and for informal carers of people with heart failure: A methodological paper
- Utgivningsår
- 2023
- Tidskrift
- Journal of Clinical Nursing
- Volym
- 32
- Sidor
- 7589-7604
- Url
- DOI: 10.1111/jocn.16856
- Sammanfattning
Abstract
Aim: To describe the co-designing process of an online support programme with and for informal carers of people with heart failure.
Design: A co- design process built on core concepts and ideas embedded in co-design methodology.
Data sources: Our co-design process included three phases involving 32 informal caregivers and 25 content creators; (1) Identification of topics and content through literature searches, focus group interviews and user group sessions; (2) Development of the online support programme and; (3) Refinement and finalization which included testing a paper prototype followed by testing the online version and testing and ap-proval of the final version of the support programme.
Outcomes: The co-design process resulted in a support programme consisting of 15 different modules relevant to informal carers, delivered on a National Health Portal.
Conclusion: Co- design is an explorative process where researchers need to balance a range of potentially conflicting factors and to ensure that the end users are genuinely included in the process.
Relevance to clinical practice: Emphasizing equal involvement of end users (e.g. car-ers or patients) in the design and development of healthcare interventions aligns with contemporary ideas of person-centred care and provides a valuable learning oppor-tunity for those involved. Furthermore, a co-designed online support programme has the capacity to be both accessible and meet end users' information and support needs, thereby optimizing their self-care abilities. Additionally, an online support programme