Living an ordinary life – yet not: the everyday life of children and adolescents living with a parent with deafblindness
- Karina Huus, Ann-Sofie Sundqvist, Agneta Anderzén-Carlsson, Moa Wahlqvist, Maria Björk
- Living an ordinary life – yet not: the everyday life of children and adolescents living with a parent with deafblindness
- International Journal of Qualitative Studies on Health and Well-being
- DOI: 10.1080/17482631.2022.2064049
- Child as a relative; deafblindness; everyday life; parent; participation
Introduction: The family life of people living with one family member with deafblindness has
been sparsely described.
Purpose: The aim of the study was to explore how children experience their everyday family
life when having a parent with deafblindness.
Methods: An explorative study in which data have been collected by qualitative interviews of
children. Qualitative content analysis has been used for analysing the data.
Results: Overall theme; Living an ordinary life—yet not, is based on four categories with
subcategories. A family like any other describes: Having the same family life as their friends,
Acting like other children and It is what it is. Different everyday life describes: Acknowledging
differences, Adjusting to the parent’s needs and Financial strain. Being there for the parent
describes: Helping the parent and Protecting the parent from harm. Being emotionally affected
describes: Feelings of frustration, Feelings of compassion and Need for support.
Conclusion: Children as relatives of parents with deafblindness have been given a voice. The
children live an ordinary life, but at the same time a different ordinary life. Professionals need
to take the child and their needs into account when support is given.