Being the next of kin of an adult person with muscular dystrophy
- Författare
- Boström K, Ahlström G, Sunvisson H.
- Titel
- Being the next of kin of an adult person with muscular dystrophy
- Utgivningsår
- 2006
- Tidskrift
- Clinical Nursing Research
- Volym
- 15
- Häfte
- 2
- Sidor
- 86-104
- Sammanfattning
A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N= 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n= 14), parent (18%, n= 7), child (21%, n= 8), sibling (15%, n= 6), and other relative (3%, n= 1). Latent content analysis is employed and involves an interpretation of the interviewtext. The results showthe meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family; the span between obligation and love; being vigilant, protective, and supportive; and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease.